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Glener AD, Allori AC, Shammas RL, et al. A Population-Based Exploration of the Social Implications Associated with Cleft Lip and/or Palate. Plast Reconstr Surg Glob Open. 2017;5(6):e1373doi: 10.1097/GOX.0000000000001373.
Glener, A. D., Allori, A. C., Shammas, R. L., Carlson, A. R., Pien, I. J., Aylsworth, A. S., Meyer, R., Pimenta, L., Strauss, R., Watkins, S., & Marcus, J. R. (2017). A Population-Based Exploration of the Social Implications Associated with Cleft Lip and/or Palate. Plastic and reconstructive surgery. Global open, 5(6), e1373. https://doi.org/10.1097/GOX.0000000000001373
Glener, Adam D, et al. "A Population-Based Exploration of the Social Implications Associated with Cleft Lip and/or Palate." Plastic and reconstructive surgery. Global open vol. 5,6 (2017): e1373. doi: https://doi.org/10.1097/GOX.0000000000001373
Glener AD, Allori AC, Shammas RL, Carlson AR, Pien IJ, Aylsworth AS, Meyer R, Pimenta L, Strauss R, Watkins S, Marcus JR. A Population-Based Exploration of the Social Implications Associated with Cleft Lip and/or Palate. Plast Reconstr Surg Glob Open. 2017 Jun 29;5(6):e1373. doi: 10.1097/GOX.0000000000001373. eCollection 2017 Jun. PMID: 28740782; PMCID: PMC5505843.
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Plast Reconstr Surg Glob Open. 2017 Jun 29;5(6):e1373. doi: 10.1097/GOX.0000000000001373. eCollection 2017 Jun.

A Population-Based Exploration of the Social Implications Associated with Cleft Lip and/or Palate.

Plastic and reconstructive surgery. Global open

Adam D Glener, Alexander C Allori, Ronnie L Shammas, Anna R Carlson, Irene J Pien, Arthur S Aylsworth, Robert Meyer, Luiz Pimenta, Ronald Strauss, Stephanie Watkins, Jeffrey R Marcus

Affiliations

  1. Division of Plastic, Maxillofacial and Oral Surgery, Duke University Hospital, Durham, N.C.; Division of Plastic, Maxillofacial and Oral Surgery, Duke University Hospital and Children's Health Center, Durham, N.C.; Department of Surgery, Division of Plastic and Reconstructive Surgery, University of California, Los Angeles, Calif.; Departments of Pediatrics and Genetics, University of North Carolina at Chapel Hill, Chapel Hill, N.C.; North Carolina State Center for Health Statistics Birth Defects Monitoring Program, Raleigh, N.C.; Department of Dental Ecology, School of Dentistry, University of North Carolina at Chapel Hill, Chapel Hill, N.C.; and Center for Health Promotion and Disease Prevention, University of North Carolina at Chapel Hill, Chapel Hill, N.C.

PMID: 28740782 PMCID: PMC5505843 DOI: 10.1097/GOX.0000000000001373

Abstract

BACKGROUND: Clefts of the lip and/or palate (CL/P) carry a social stigma that often causes psychosocial stress. The purpose of this study was to consider the association of cleft phenotype and age with self-reported aspects of psychosocial stress.

METHODS: Children with nonsyndromic CL/P and unaffected children born between 1997 and 2003 were identified through the North Carolina Birth Defects Monitoring Program and North Carolina birth records, respectively. The psychosocial concerns of children with CL/P were assessed via a 29-question subset of a larger survey. Responses were analyzed according to school age and cleft phenotype (cleft lip with/without cleft alveolus, CL ± A; cleft palate only, CP; or cleft lip with cleft palate, CL + P).

RESULTS: Surveys were returned for 176 children with CL/P and 333 unaffected children. When compared with unaffected children, responses differed for CL ± A in 4/29 questions, for CP in 7/29 questions, and for CL + P in 8/29 questions (

CONCLUSION: Social implications associated with CL/P are most pronounced during middle school, and less so during elementary and high school. This information identifies areas of social improvement aimed at reducing the stigma of CL/P.

References

  1. Cleft Palate Craniofac J. 2009 Jul;46(4):435-43 - PubMed
  2. Mund Kiefer Gesichtschir. 1999 May;3(3):134-9 - PubMed
  3. Cleft Palate Craniofac J. 2016 May 25;:null - PubMed
  4. Cleft Palate Craniofac J. 2012 Jul;49(4):387-96 - PubMed
  5. Clin Plast Surg. 2004 Apr;31(2):347-52 - PubMed
  6. Cleft Palate Craniofac J. 2017 Jan;54(1):2-12 - PubMed
  7. J Craniofac Surg. 2009 Nov;20(6):2061-6 - PubMed
  8. J Craniofac Surg. 2008 May;19(3):580-7 - PubMed
  9. Pediatrics. 2007 Aug;120(2):e283-90 - PubMed
  10. Community Dent Oral Epidemiol. 2007 Aug;35 Suppl 1:8-19 - PubMed
  11. JAMA. 2001 Apr 25;285(16):2094-100 - PubMed
  12. Cleft Palate Craniofac J. 2016 Dec 21;:null - PubMed
  13. J Plast Reconstr Aesthet Surg. 2012 May;65(5):547-57 - PubMed
  14. Cleft Palate Craniofac J. 2016 Jul;53(4):421-6 - PubMed
  15. Eur J Orthod. 1998 Aug;20(4):407-15 - PubMed
  16. Cleft Palate Craniofac J. 2015 Sep;52(5):543-54 - PubMed
  17. J Child Psychol Psychiatry. 2010 Jan;51(1):94-103 - PubMed
  18. Cleft Palate Craniofac J. 2011 Jan;48(1):91-7 - PubMed
  19. BMJ Open. 2017 Jan 11;7(1):e015467 - PubMed
  20. Cleft Palate Craniofac J. 2017 Mar;54(2):175-188 - PubMed
  21. Br J Plast Surg. 1997 Jan;50(1):1-9 - PubMed
  22. Birth Defects Res A Clin Mol Teratol. 2015 Nov;103(11):899-903 - PubMed
  23. Cleft Palate Craniofac J. 1991 Oct;28(4):347-53 - PubMed
  24. Cleft Palate J. 1989 Apr;26(2):114-7; discussion 117-8 - PubMed
  25. Cleft Palate J. 1979 Apr;16(2):171-6 - PubMed
  26. Cleft Palate Craniofac J. 1992 Jul;29(4):352-6 - PubMed
  27. Cleft Palate Craniofac J. 2009 Jan;46(1):65-74 - PubMed
  28. Scand J Plast Reconstr Surg Hand Surg. 2002;36(1):24-7 - PubMed
  29. Soc Work Health Care. 2016 Apr;55(4):280-95 - PubMed
  30. J Orofac Orthop. 2009 Jul;70(4):274-84 - PubMed
  31. Cleft Palate Craniofac J. 2006 Sep;43(5):598-605 - PubMed
  32. Int J Pediatr Otorhinolaryngol. 2015 Jul;79(7):1041-8 - PubMed
  33. Cleft Palate Craniofac J. 1999 Jan;36(1):3-11 - PubMed
  34. Cleft Palate Craniofac J. 2001 Jan;38(1):68-75 - PubMed
  35. Cleft Palate Craniofac J. 2007 Sep;44(5):538-47 - PubMed
  36. Body Image. 2010 Sep;7(4):271-9 - PubMed

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