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Coors M, Bauer L, Edwards K, et al. Ethical issues related to clinical research and rare diseases: 15th Gordon L. Snider Critical Issues Workshop, April 1, 2016, Bethesda, Maryland. Transl Sci Rare Dis. 2017;2(3):175-194doi: 10.3233/TRD-170013.
Coors, M., Bauer, L., Edwards, K., Erickson, K., Goldenberg, A., Goodale, J., Goodman, K., Grady, C., Mannino, D., Wanner, A., Wilson, T., Yarborough, M., & Zirkle, M. (2017). Ethical issues related to clinical research and rare diseases: 15th Gordon L. Snider Critical Issues Workshop, April 1, 2016, Bethesda, Maryland. Translational science of rare diseases, 2(3), 175-194. https://doi.org/10.3233/TRD-170013
Coors, Marilyn, et al. "Ethical issues related to clinical research and rare diseases: 15th Gordon L. Snider Critical Issues Workshop, April 1, 2016, Bethesda, Maryland." Translational science of rare diseases vol. 2,3 (2017): 175-194. doi: https://doi.org/10.3233/TRD-170013
Coors M, Bauer L, Edwards K, Erickson K, Goldenberg A, Goodale J, Goodman K, Grady C, Mannino D, Wanner A, Wilson T, Yarborough M, Zirkle M. Ethical issues related to clinical research and rare diseases: 15th Gordon L. Snider Critical Issues Workshop, April 1, 2016, Bethesda, Maryland. Transl Sci Rare Dis. 2017 Dec 18;2(3):175-194. doi: 10.3233/TRD-170013. PMID: 29430401; PMCID: PMC5764070.
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Transl Sci Rare Dis. 2017 Dec 18;2(3):175-194. doi: 10.3233/TRD-170013.

Ethical issues related to clinical research and rare diseases: 15th Gordon L. Snider Critical Issues Workshop, April 1, 2016, Bethesda, Maryland.

Translational science of rare diseases

Marilyn Coors, Larry Bauer, Kelly Edwards, Karen Erickson, Aaron Goldenberg, John Goodale, Kenneth Goodman, Christine Grady, David Mannino, Adam Wanner, Todd Wilson, Mark Yarborough, Maryan Zirkle

Affiliations

  1. University of Colorado.
  2. Center for Drug Evaluation and Research, FDA.
  3. University of Washington.
  4. Alpha-1 Foundation.
  5. Case Western University.
  6. Goodale Associates.
  7. University of Miami.
  8. Department of Bioethics, NIH Clinical Center.
  9. University of Kentucky.
  10. National Center for Advancing Translational Sciences, NIH.
  11. University of California Davis.
  12. National Patient-Centered Clinical Data Research Network.

PMID: 29430401 PMCID: PMC5764070 DOI: 10.3233/TRD-170013

[No abstract available.]

References

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