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Charles S, Kirkbride JB, Onwumere J, et al. Carer subjective burden after first-episode psychosis: Types and predictors. A multilevel statistical approach. Int J Soc Psychiatry. 2020;67(1):73-83doi: 10.1177/0020764020930041.
Charles, S., Kirkbride, J. B., Onwumere, J., Lyons, N., Man, L. C., Floyd, C., Widuch, K., Brown, L., James, G., Afsharzadegan, R., Souray, J., & Raune, D. (2021). Carer subjective burden after first-episode psychosis: Types and predictors. A multilevel statistical approach. The International journal of social psychiatry, 67(1), 73-83. https://doi.org/10.1177/0020764020930041
Charles, Shereen, et al. "Carer subjective burden after first-episode psychosis: Types and predictors. A multilevel statistical approach." The International journal of social psychiatry vol. 67,1 (2021): 73-83. doi: https://doi.org/10.1177/0020764020930041
Charles S, Kirkbride JB, Onwumere J, Lyons N, Man LC, Floyd C, Widuch K, Brown L, James G, Afsharzadegan R, Souray J, Raune D. Carer subjective burden after first-episode psychosis: Types and predictors. A multilevel statistical approach. Int J Soc Psychiatry. 2021 Feb;67(1):73-83. doi: 10.1177/0020764020930041. Epub 2020 Jun 10. PMID: 32522056; PMCID: PMC8191154.
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Int J Soc Psychiatry. 2021 Feb;67(1):73-83. doi: 10.1177/0020764020930041. Epub 2020 Jun 10.

Carer subjective burden after first-episode psychosis: Types and predictors. A multilevel statistical approach.

The International journal of social psychiatry

Shereen Charles, James B Kirkbride, Juliana Onwumere, Natasha Lyons, Lai Chu Man, Caroline Floyd, Kaja Widuch, Lucy Brown, Gareth James, Roya Afsharzadegan, Jonathan Souray, David Raune

Affiliations

  1. Division of Psychiatry, University College London, London, UK.
  2. Harrow and Hillingdon Early Intervention in Psychosis Service, Central and North West London NHS Foundation Trust, London, UK.
  3. Department of Psychology, Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, UK.
  4. Bethlem Royal Hospital, South London and Maudsley NHS Foundation Trust, Beckenham, UK.

PMID: 32522056 PMCID: PMC8191154 DOI: 10.1177/0020764020930041

Abstract

BACKGROUND: Carer burden at first-episode psychosis is common and adds to the multiple other psychiatric and psychological problems that beset new carers; yet, knowledge of the factors that predict carer burden is limited.

AIM: This study sought to investigate the types and predictors of carer burden at first-episode psychosis in the largest, most ethnically diverse and comprehensively characterised sample to date.

METHOD: This study involved a cross-sectional survey of carers of people with first-episode psychosis presenting to Harrow and Hillingdon Early Intervention in Psychosis service between 2011 and 2017. Carers completed self-report measures assessing their illness beliefs, coping styles and caregiving experiences (i.e. burden). Thirty carer and patient sociodemographic and clinical factors were also collected. Mixed effects linear regression modelling was conducted to account for clustering of carers by patient, with carer burden (and its 8 subtypes) investigated as dependent variables.

RESULTS: The sample included data on 254 carers (aged 18-74 years) and 198 patients (aged 14-36 years). Regression modelling identified 35 significant predictors of carer burden and its subtypes at first-episode psychosis. Higher total burden was independently predicted by perceiving greater negative consequences of the illness for the patient (B = .014,

CONCLUSION: Findings can be used to inform the identification of carers 'at-risk' of experiencing burden and highlight potential targets for theraputic intervention to lower carer buden.

Keywords: Carer burden; coping styles; first-episode psychosis; illness beliefs; psychosis; subjective burden

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