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Patient Educ Couns. 2021 Nov;104(11):2763-2771. doi: 10.1016/j.pec.2021.03.031. Epub 2021 Mar 31.

Completion of advance directives among African Americans and Whites adults.

Patient education and counseling

Mohsen Bazargan, Sharon Cobb, Shervin Assari

Affiliations

  1. Department of Family Medicine, College of Medicine, Charles R. Drew University of Medicine and Science (CDU), Los Angeles, CA, USA; Department of Family Medicine, David Geffen School of Medicine, UCLA, Los Angeles, CA, USA; Department of Public Health, CDU, Los Angeles, CA, USA; Physician Assistant Program, CDU, Los Angeles, CA, USA. Electronic address: [email protected].
  2. School of Nursing, CDU, Los Angeles, CA, USA.
  3. Department of Family Medicine, College of Medicine, Charles R. Drew University of Medicine and Science (CDU), Los Angeles, CA, USA; Department of Public Health, CDU, Los Angeles, CA, USA.

PMID: 33840551 PMCID: PMC8481344 DOI: 10.1016/j.pec.2021.03.031

Abstract

OBJECTIVE: The primary purpose of this study was to analyze the completion of advance directives among African American and White adults and examine related factors, including demographics, socio-economic status, health conditions, and experiences with health care providers.

METHODS: This study used data from the Survey of California Adults on Serious Illness and End-of-Life 2019. We compared correlates of completion of advance directives among a sample of 1635 African American and White adults. Multivariate analysis was conducted.

RESULTS: Whites were 50% more likely to complete an advance directive than African Americans. The major differences between African Americans and Whites were mainly explained by the level of mistrust and discrimination experienced by African Americans and partially explained by demographic characteristics. Our study showed that at both bivariate and multivariate levels, participation in religious activities was associated with higher odds of completion of an advance directive for both African Americans and Whites.

CONCLUSION: Interventional studies needed to address the impact of mistrust and perceived discrimination on advance directive completion.

PRACTICAL IMPLICATIONS: Culturally appropriate multifaceted, theoretical- and religious-based interventions are needed that include minority health care providers, church leaders, and legal counselors to educate, modify attitudes, provide skills and resources for communicating with health care providers and family members.

Copyright © 2021 Elsevier B.V. All rights reserved.

Keywords: Advance directives; African Americans; Discrimination; Ethnicity/Race; Mistrust

Conflict of interest statement

Conflicts of interest The authors declare no conflicts of interest.

References

  1. J Fam Pract. 2004 Sep;53(9):721-30 - PubMed
  2. Omega (Westport). 2011;63(1):1-20 - PubMed
  3. Med Care. 2013 Feb;51(2):144-50 - PubMed
  4. Mil Med. 2017 Nov;182(11):e2073-e2079 - PubMed
  5. J Oncol Pract. 2017 Oct;13(10):670-671 - PubMed
  6. J Gerontol Soc Work. 2016 Jul;59(5):401-422 - PubMed
  7. Chest. 2017 Jun;151(6):1387-1393 - PubMed
  8. Soc Sci Med. 2008 Oct;67(7):1122-32 - PubMed
  9. Clin Epidemiol. 2020 Feb 05;12:143-151 - PubMed
  10. Res Aging. 2018 Mar;40(3):281-302 - PubMed
  11. Palliat Support Care. 2019 Jun;17(3):306-313 - PubMed
  12. SSM Popul Health. 2018 Nov 30;7:100331 - PubMed
  13. Omega (Westport). 2012;65(2):125-37 - PubMed
  14. J Palliat Med. 2016 Feb;19(2):202-27 - PubMed
  15. J Palliat Med. 2016 Feb;19(2):143-8 - PubMed
  16. Patient Educ Couns. 2010 Jul;80(1):10-20 - PubMed
  17. J Palliat Med. 2015 Jun;18(6):500-5 - PubMed
  18. Curr Opin Support Palliat Care. 2017 Dec;11(4):293-298 - PubMed
  19. J Pain Symptom Manage. 2017 Apr;53(4):682-692 - PubMed
  20. Prim Care. 2017 Sep;44(3):511-518 - PubMed
  21. J Palliat Med. 2016 Feb;19(2):164-73 - PubMed
  22. J Immigr Minor Health. 2018 Oct;20(5):1277-1287 - PubMed
  23. Psychooncology. 2016 Apr;25(4):362-86 - PubMed
  24. J Crit Care. 2004 Mar;19(1):1-9 - PubMed
  25. Res Gerontol Nurs. 2019 Jan 1;12(1):34-43 - PubMed
  26. Clin J Am Soc Nephrol. 2018 Jul 6;13(7):1022-1029 - PubMed
  27. Am J Hosp Palliat Care. 2017 Jun;34(5):423-429 - PubMed
  28. Ann Behav Med. 2005 Oct;30(2):174-9 - PubMed
  29. J Palliat Med. 2002 Oct;5(5):697-704 - PubMed
  30. Popul Health Manag. 2018 Aug;21(4):285-290 - PubMed
  31. J Am Assoc Nurse Pract. 2018 May;30(5):270-279 - PubMed
  32. Am J Prev Med. 2014 Jan;46(1):65-70 - PubMed
  33. J Gerontol B Psychol Sci Soc Sci. 2007 Mar;62(2):S135-41 - PubMed
  34. J Psychosoc Oncol. 2018 Jul-Aug;36(4):454-469 - PubMed
  35. J Am Med Dir Assoc. 2014 Jul;15(7):477-489 - PubMed
  36. J Palliat Med. 2018 Aug;21(8):1078-1085 - PubMed
  37. J Aging Health. 2012 Sep;24(6):923-47 - PubMed
  38. Q J Econ. 2018 Feb;133(1):407-455 - PubMed
  39. J Palliat Med. 2016 Feb;19(2):149-56 - PubMed
  40. Curr Opin Psychol. 2017 Dec;18:15-20 - PubMed
  41. J Am Geriatr Soc. 2017 Jun;65(6):1352-1357 - PubMed
  42. PLoS One. 2015 Nov 09;10(11):e0142629 - PubMed
  43. Arch Intern Med. 2010 Sep 27;170(17):1533-40 - PubMed
  44. Qual Health Res. 2001 May;11(3):385-98 - PubMed
  45. Am J Hosp Palliat Care. 2018 Jan;35(1):34-40 - PubMed
  46. J Palliat Med. 2012 Jan;15(1):86-92 - PubMed
  47. Top Antivir Med. 2016 Dec-2017 Jan;23(5):174-80 - PubMed
  48. Am J Nephrol. 2016;44(1):46-53 - PubMed
  49. J Palliat Med. 2020 Oct;23(10):1300-1306 - PubMed
  50. JAMA Intern Med. 2017 Aug 1;177(8):1102-1109 - PubMed
  51. Midwifery. 2018 Nov;66:182-186 - PubMed
  52. Ethn Dis. 2009 Summer;19(3):330-7 - PubMed
  53. J Clin Oncol. 2008 Sep 1;26(25):4131-7 - PubMed
  54. Aust Health Rev. 2015 Nov;39(5):528-532 - PubMed
  55. J Rural Health. 2014 Fall;30(4):344-51 - PubMed
  56. Cancer Control. 2017 Jan;24(1):72-77 - PubMed
  57. PLoS One. 2019 Apr 25;14(4):e0215976 - PubMed
  58. J Gerontol B Psychol Sci Soc Sci. 2018 Apr 16;73(4):687-695 - PubMed
  59. J Natl Med Assoc. 2006 Sep;98(9):1532-40 - PubMed
  60. Am J Hosp Palliat Care. 2019 Dec;36(12):1057-1062 - PubMed
  61. Cancer. 2014 Dec 15;120(24):3981-6 - PubMed
  62. Clin J Am Soc Nephrol. 2016 May 6;11(5):855-66 - PubMed

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