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Soc Sci Med. 2021 Dec;291:114500. doi: 10.1016/j.socscimed.2021.114500. Epub 2021 Oct 22.

Politicized disease surveillance: A theoretical lens for understanding sociopolitical influence on the monitoring of disease epidemics.

Social science & medicine (1982)

Michael P Fisher

Affiliations

  1. Towson University, Department of Health Sciences, 8000 York Road, Linthicum Hall, #121L, Towson, MD, 21252, USA. Electronic address: [email protected].

PMID: 34757240 DOI: 10.1016/j.socscimed.2021.114500

Abstract

Sociopolitical forces commonly influence the collection, analysis, dissemination, and general perceptions of epidemiological information. Yet few theoretical lenses provide insight into the mechanisms through which such influence occurs. In this article, I draw and expand upon empirical findings to propose a novel theoretical lens, politicized disease surveillance, which I define as extreme or undue sociopolitical influence on public health surveillance systems or processes in ways that impact disease incidences and prevalences, or estimates or perceptions thereof. This lens foregrounds disease incidence and prevalence as objects of contestation and policy influence and articulates how certain facets of sociopolitical forces shape disease incidences and prevalences-especially amid an epidemic-through one or more channels: (1) the diagnostic construct; (2) screening tools, procedures, or systems; or (3) the behaviors of individuals who are living with or at risk for a certain disease. I provide several contemporary illustrations of politicized disease surveillance and discuss its theoretical and practical implications.

Copyright © 2021 Elsevier Ltd. All rights reserved.

Keywords: Disease prevalence; Health politics; Political epidemiology; Politicized disease surveillance; Sociology of diagnosis

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