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Perceived benefits and facilitators and barriers to providing psychosocial interventions for informal caregivers of people with rare diseases: a scoping review

Stem education interventions

Rice DB.
GSID: ZcoaTJ0ElnMJ
DB Rice, A Carboni-Jiménez, M Cañedo-Ayala… - The Patient-Patient …, 2020 - Springer

Background Little is known about the benefits, and barriers and facilitators to providing psychosocial support to caregivers to a loved one with a rare disease. Objective The aim of our scoping review was to map evidence on (1) perceived...

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Rice, D. B., Carboni-Jiménez, A., Cañedo-Ayala, M., Turner, K. A., Chiovitti, M., Levis, A. W., & Thombs, B. D. (2020). Perceived benefits and facilitators and barriers to providing psychosocial interventions for informal caregivers of people with rare diseases: a scoping review. The Patient-Patient-Centered Outcomes Research, 13(5), 471-519.
Rice, Danielle B., et al. "Perceived benefits and facilitators and barriers to providing psychosocial interventions for informal caregivers of people with rare diseases: a scoping review." The Patient-Patient-Centered Outcomes Research 13.5 (2020): 471-519.
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[3 paradoxes in the development of health services].

Boletin de informacion dental

Rice DR.
PMID: 4511553
Bol Inf Dent (Madr). 1972 Nov;32(248):76-84.

No abstract available.

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Rice DR. Tres parodojas en el desarrollo de la salud. [3 paradoxes in the development of health services]. Bol Inf Dent (Madr). 1972;32(248):76-84
Rice, D. R. (1972). Tres parodojas en el desarrollo de la salud. [3 paradoxes in the development of health services]. Boletin de informacion dental, 32(248), 76-84.
Rice, D R. "Tres parodojas en el desarrollo de la salud." [3 paradoxes in the development of health services]. Boletin de informacion dental vol. 32,248 (1972): 76-84.
Rice DR. Tres parodojas en el desarrollo de la salud. [3 paradoxes in the development of health services]. Bol Inf Dent (Madr). 1972 Nov;32(248):76-84. Spanish. PMID: 4511553.
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Direct MRI detection of impending plaque development in multiple sclerosis.

Neurology(R) neuroimmunology & neuroinflammation

Absinta M, Nair G, Sati P, Cortese IC, Filippi M, Reich DS.
PMID: 26401516
Neurol Neuroimmunol Neuroinflamm. 2015 Sep 03;2(5):e145. doi: 10.1212/NXI.0000000000000145. eCollection 2015 Oct.

OBJECTIVES: To detect and localize MRI signal changes prior to the parenchymal contrast enhancement that classically defines the radiologic onset of the developing white matter lesion in multiple sclerosis (MS).METHODS: We reviewed 308 high-resolution (≤1 mm(3) voxels) MRI scans...

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Absinta M, Nair G, Sati P, et al. Direct MRI detection of impending plaque development in multiple sclerosis. Neurol Neuroimmunol Neuroinflamm. 2015;2(5):e145doi: 10.1212/NXI.0000000000000145.
Absinta, M., Nair, G., Sati, P., Cortese, I. C., Filippi, M., & Reich, D. S. (2015). Direct MRI detection of impending plaque development in multiple sclerosis. Neurology(R) neuroimmunology & neuroinflammation, 2(5), e145. https://doi.org/10.1212/NXI.0000000000000145
Absinta, Martina, et al. "Direct MRI detection of impending plaque development in multiple sclerosis." Neurology(R) neuroimmunology & neuroinflammation vol. 2,5 (2015): e145. doi: https://doi.org/10.1212/NXI.0000000000000145
Absinta M, Nair G, Sati P, Cortese IC, Filippi M, Reich DS. Direct MRI detection of impending plaque development in multiple sclerosis. Neurol Neuroimmunol Neuroinflamm. 2015 Sep 03;2(5):e145. doi: 10.1212/NXI.0000000000000145. eCollection 2015 Oct. PMID: 26401516; PMCID: PMC4561231.
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Crosstalk between the HpArsRS two-component system and HpNikR is necessary for maximal activation of urease transcription.

Frontiers in microbiology

Carpenter BM, West AL, Gancz H, Servetas SL, Pich OQ, Gilbreath JJ, Hallinger DR, Forsyth MH, Merrell DS, Michel SL, Contreras S, Dehning J, Loidolt M, Zierenberg J.
PMID: 26124751
Front Microbiol. 2015 Jun 12;6:558. doi: 10.3389/fmicb.2015.00558. eCollection 2015.

Helicobacter pylori NikR (HpNikR) is a nickel dependent transcription factor that directly regulates a number of genes in this important gastric pathogen. One key gene that is regulated by HpNikR is ureA, which encodes for the urease enzyme. In...

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Carpenter BM, West AL, Gancz H, et al. Crosstalk between the HpArsRS two-component system and HpNikR is necessary for maximal activation of urease transcription. Front Microbiol. 2015;6:558doi: 10.3389/fmicb.2015.00558.
Carpenter, B. M., West, A. L., Gancz, H., Servetas, S. L., Pich, O. Q., Gilbreath, J. J., Hallinger, D. R., Forsyth, M. H., Merrell, D. S., Michel, S. L., Contreras, S., Dehning, J., Loidolt, M., & Zierenberg, J. (2015). Crosstalk between the HpArsRS two-component system and HpNikR is necessary for maximal activation of urease transcription. Frontiers in microbiology, 6558. https://doi.org/10.3389/fmicb.2015.00558
Carpenter, Beth M, et al. "Crosstalk between the HpArsRS two-component system and HpNikR is necessary for maximal activation of urease transcription." Frontiers in microbiology vol. 6 (2015): 558. doi: https://doi.org/10.3389/fmicb.2015.00558
Carpenter BM, West AL, Gancz H, Servetas SL, Pich OQ, Gilbreath JJ, Hallinger DR, Forsyth MH, Merrell DS, Michel SL, Contreras S, Dehning J, Loidolt M, Zierenberg J. Crosstalk between the HpArsRS two-component system and HpNikR is necessary for maximal activation of urease transcription. Front Microbiol. 2015 Jun 12;6:558. doi: 10.3389/fmicb.2015.00558. eCollection 2015. PMID: 26124751; PMCID: PMC4464171.
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Effect of Air Pollution Controls on Black Smoke and Sulfur Dioxide Concentrations across Ireland.

Journal of the Air & Waste Management Association (1995)

Goodman PG, Rich DQ, Zeka A, Clancy L, Dockery DW.
PMID: 29116922
J Air Waste Manag Assoc. 2009 Feb;59(2):207-213. doi: 10.3155/1047-3289.59.2.207.

During the 1980s Ireland experienced severe pollution episodes, principally because of domestic coal burning. In 1990, the Irish government introduced a ban on the marketing, sale, and distribution of coal in Dublin. They extended the ban to Cork in...

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Goodman PG, Rich DQ, Zeka A, et al. Effect of Air Pollution Controls on Black Smoke and Sulfur Dioxide Concentrations across Ireland. J Air Waste Manag Assoc. 2009;59(2):207-213doi: 10.3155/1047-3289.59.2.207.
Goodman, P. G., Rich, D. Q., Zeka, A., Clancy, L., & Dockery, D. W. (2009). Effect of Air Pollution Controls on Black Smoke and Sulfur Dioxide Concentrations across Ireland. Journal of the Air & Waste Management Association (1995), 59(2), 207-213. https://doi.org/10.3155/1047-3289.59.2.207
Goodman, Patrick G, et al. "Effect of Air Pollution Controls on Black Smoke and Sulfur Dioxide Concentrations across Ireland." Journal of the Air & Waste Management Association (1995) vol. 59,2 (2009): 207-213. doi: https://doi.org/10.3155/1047-3289.59.2.207
Goodman PG, Rich DQ, Zeka A, Clancy L, Dockery DW. Effect of Air Pollution Controls on Black Smoke and Sulfur Dioxide Concentrations across Ireland. J Air Waste Manag Assoc. 2009 Feb;59(2):207-213. doi: 10.3155/1047-3289.59.2.207. PMID: 29116922.
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Corrigendum: Adiponectin receptor 1 conserves docosahexaenoic acid and promotes photoreceptor cell survival.

Nature communications

Rice DS, Calandria JM, Gordon WC, Jun B, Zhou Y, Gelfman CM, Li S, Jin M, Knott EJ, Chang B, Abuin A, Issa T, Potter D, Platt KA, Bazan NG.
PMID: 25962704
Nat Commun. 2015 May 12;6:7225. doi: 10.1038/ncomms8225.

No abstract available.

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Rice DS, Calandria JM, Gordon WC, et al. Corrigendum: Adiponectin receptor 1 conserves docosahexaenoic acid and promotes photoreceptor cell survival. Nat Commun. 2015;6:7225doi: 10.1038/ncomms8225.
Rice, D. S., Calandria, J. M., Gordon, W. C., Jun, B., Zhou, Y., Gelfman, C. M., Li, S., Jin, M., Knott, E. J., Chang, B., Abuin, A., Issa, T., Potter, D., Platt, K. A., & Bazan, N. G. (2015). Corrigendum: Adiponectin receptor 1 conserves docosahexaenoic acid and promotes photoreceptor cell survival. Nature communications, 67225. https://doi.org/10.1038/ncomms8225
Rice, Dennis S, et al. "Corrigendum: Adiponectin receptor 1 conserves docosahexaenoic acid and promotes photoreceptor cell survival." Nature communications vol. 6 (2015): 7225. doi: https://doi.org/10.1038/ncomms8225
Rice DS, Calandria JM, Gordon WC, Jun B, Zhou Y, Gelfman CM, Li S, Jin M, Knott EJ, Chang B, Abuin A, Issa T, Potter D, Platt KA, Bazan NG. Corrigendum: Adiponectin receptor 1 conserves docosahexaenoic acid and promotes photoreceptor cell survival. Nat Commun. 2015 May 12;6:7225. doi: 10.1038/ncomms8225. PMID: 25962704; PMCID: PMC4462836.
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Transport coefficients from the boson Uehling-Uhlenbeck equation.

Physical review. E, Statistical, nonlinear, and soft matter physics

Gust ED, Reichl LE.
PMID: 23679375
Phys Rev E Stat Nonlin Soft Matter Phys. 2013 Apr;87(4):042109. doi: 10.1103/PhysRevE.87.042109. Epub 2013 Apr 15.

Expressions for the bulk viscosity, shear viscosity, and thermal conductivity of a quantum degenerate Bose gas above the critical temperature for Bose-Einstein condensation are derived using the Uehling-Uhlenbeck kinetic equation. For contact potentials and hard sphere interactions, the eigenvalues...

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Gust ED, Reichl LE. Transport coefficients from the boson Uehling-Uhlenbeck equation. Phys Rev E Stat Nonlin Soft Matter Phys. 2013;87(4):042109doi: 10.1103/PhysRevE.87.042109.
Gust, E. D., & Reichl, L. E. (2013). Transport coefficients from the boson Uehling-Uhlenbeck equation. Physical review. E, Statistical, nonlinear, and soft matter physics, 87(4), 042109. https://doi.org/10.1103/PhysRevE.87.042109
Gust, Erich D, and Reichl, L E. "Transport coefficients from the boson Uehling-Uhlenbeck equation." Physical review. E, Statistical, nonlinear, and soft matter physics vol. 87,4 (2013): 042109. doi: https://doi.org/10.1103/PhysRevE.87.042109
Gust ED, Reichl LE. Transport coefficients from the boson Uehling-Uhlenbeck equation. Phys Rev E Stat Nonlin Soft Matter Phys. 2013 Apr;87(4):042109. doi: 10.1103/PhysRevE.87.042109. Epub 2013 Apr 15. PMID: 23679375.
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Observations of exciton-surface plasmon polariton coupling and exciton-phonon coupling in InGaN/GaN quantum wells covered with Au, Ag, and Al films.

Journal of physics. Condensed matter : an Institute of Physics journal

Estrin Y, Rich DH, Keller S, DenBaars SP.
PMID: 26076324
J Phys Condens Matter. 2015 Jul 08;27(26):265802. doi: 10.1088/0953-8984/27/26/265802. Epub 2015 Jun 15.

The coupling of excitons to surface plasmon polaritons (SPPs) and longitudinal optical (LO) phonons in Au-, Ag-, and Al-coated InxGa1-xN/GaN multiple and single quantum wells (SQWs) was studied with time-resolved cathodoluminescence (CL) and CL wavelength imaging techniques. Excitons were...

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Estrin Y, Rich DH, Keller S, et al. Observations of exciton-surface plasmon polariton coupling and exciton-phonon coupling in InGaN/GaN quantum wells covered with Au, Ag, and Al films. J Phys Condens Matter. 2015;27(26):265802doi: 10.1088/0953-8984/27/26/265802.
Estrin, Y., Rich, D. H., Keller, S., & DenBaars, S. P. (2015). Observations of exciton-surface plasmon polariton coupling and exciton-phonon coupling in InGaN/GaN quantum wells covered with Au, Ag, and Al films. Journal of physics. Condensed matter : an Institute of Physics journal, 27(26), 265802. https://doi.org/10.1088/0953-8984/27/26/265802
Estrin, Y, et al. "Observations of exciton-surface plasmon polariton coupling and exciton-phonon coupling in InGaN/GaN quantum wells covered with Au, Ag, and Al films." Journal of physics. Condensed matter : an Institute of Physics journal vol. 27,26 (2015): 265802. doi: https://doi.org/10.1088/0953-8984/27/26/265802
Estrin Y, Rich DH, Keller S, DenBaars SP. Observations of exciton-surface plasmon polariton coupling and exciton-phonon coupling in InGaN/GaN quantum wells covered with Au, Ag, and Al films. J Phys Condens Matter. 2015 Jul 08;27(26):265802. doi: 10.1088/0953-8984/27/26/265802. Epub 2015 Jun 15. PMID: 26076324.
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Mirror-Image Packing Provides a Molecular Basis for the Nanomolar Equipotency of Enantiomers of an Experimental Herbicide.

Angewandte Chemie (International ed. in English)

Bisson C, Britton KL, Sedelnikova SE, Rodgers HF, Eadsforth TC, Viner RC, Hawkes TR, Baker PJ, Rice DW.
PMID: 27717128
Angew Chem Int Ed Engl. 2016 Oct 17;55(43):13485-13489. doi: 10.1002/anie.201607185. Epub 2016 Sep 26.

Programs of drug discovery generally exploit one enantiomer of a chiral compound for lead development following the principle that enantiomer recognition is central to biological specificity. However, chiral promiscuity has been identified for a number of enzyme families, which...

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Bisson C, Britton KL, Sedelnikova SE, et al. Mirror-Image Packing Provides a Molecular Basis for the Nanomolar Equipotency of Enantiomers of an Experimental Herbicide. Angew Chem Int Ed Engl. 2016;55(43):13485-13489doi: 10.1002/anie.201607185.
Bisson, C., Britton, K. L., Sedelnikova, S. E., Rodgers, H. F., Eadsforth, T. C., Viner, R. C., Hawkes, T. R., Baker, P. J., & Rice, D. W. (2016). Mirror-Image Packing Provides a Molecular Basis for the Nanomolar Equipotency of Enantiomers of an Experimental Herbicide. Angewandte Chemie (International ed. in English), 55(43), 13485-13489. https://doi.org/10.1002/anie.201607185
Bisson, Claudine, et al. "Mirror-Image Packing Provides a Molecular Basis for the Nanomolar Equipotency of Enantiomers of an Experimental Herbicide." Angewandte Chemie (International ed. in English) vol. 55,43 (2016): 13485-13489. doi: https://doi.org/10.1002/anie.201607185
Bisson C, Britton KL, Sedelnikova SE, Rodgers HF, Eadsforth TC, Viner RC, Hawkes TR, Baker PJ, Rice DW. Mirror-Image Packing Provides a Molecular Basis for the Nanomolar Equipotency of Enantiomers of an Experimental Herbicide. Angew Chem Int Ed Engl. 2016 Oct 17;55(43):13485-13489. doi: 10.1002/anie.201607185. Epub 2016 Sep 26. PMID: 27717128; PMCID: PMC5113775.
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The LCLS variable-energy hard X-ray single-shot spectrometer.

Journal of synchrotron radiation

Rich D, Zhu D, Turner J, Zhang D, Hill B, Feng Y.
PMID: 26698039
J Synchrotron Radiat. 2016 Jan;23(1):3-9. doi: 10.1107/S1600577515022559. Epub 2016 Jan 01.

The engineering design, implementation, operation and performance of the new variable-energy hard X-ray single-shot spectrometer (HXSSS) for the LCLS free-electron laser (FEL) are reported. The HXSSS system is based on a cylindrically bent Si thin crystal for dispersing the...

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Rich D, Zhu D, Turner J, et al. The LCLS variable-energy hard X-ray single-shot spectrometer. J Synchrotron Radiat. 2016;23(1):3-9doi: 10.1107/S1600577515022559.
Rich, D., Zhu, D., Turner, J., Zhang, D., Hill, B., & Feng, Y. (2016). The LCLS variable-energy hard X-ray single-shot spectrometer. Journal of synchrotron radiation, 23(1), 3-9. https://doi.org/10.1107/S1600577515022559
Rich, David, et al. "The LCLS variable-energy hard X-ray single-shot spectrometer." Journal of synchrotron radiation vol. 23,1 (2016): 3-9. doi: https://doi.org/10.1107/S1600577515022559
Rich D, Zhu D, Turner J, Zhang D, Hill B, Feng Y. The LCLS variable-energy hard X-ray single-shot spectrometer. J Synchrotron Radiat. 2016 Jan;23(1):3-9. doi: 10.1107/S1600577515022559. Epub 2016 Jan 01. PMID: 26698039.
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Triplet waves in a quantum spin liquid.

Physical review letters

Xu G, Broholm C, Reich DH, Adams MA.
PMID: 10990712
Phys Rev Lett. 2000 May 08;84(19):4465-8. doi: 10.1103/PhysRevLett.84.4465.

We report a neutron scattering study of the spin- 1/2 alternating bond antiferromagnet Cu(NO3)(2);2.5D(2)O for 0.06

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Xu G, Broholm C, Reich DH, et al. Triplet waves in a quantum spin liquid. Phys Rev Lett. 2000;84(19):4465-8doi: 10.1103/PhysRevLett.84.4465.
Xu, G., Broholm, C., Reich, D. H., & Adams, M. A. (2000). Triplet waves in a quantum spin liquid. Physical review letters, 84(19), 4465-8. https://doi.org/10.1103/PhysRevLett.84.4465
Xu, et al. "Triplet waves in a quantum spin liquid." Physical review letters vol. 84,19 (2000): 4465-8. doi: https://doi.org/10.1103/PhysRevLett.84.4465
Xu G, Broholm C, Reich DH, Adams MA. Triplet waves in a quantum spin liquid. Phys Rev Lett. 2000 May 08;84(19):4465-8. doi: 10.1103/PhysRevLett.84.4465. PMID: 10990712.
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Inter- and intramolecular pathways for the formation of tetrahydrofurans from beta-(Phosphatoxy)alkyl radicals. Evidence for a dissociative mechanism.

The Journal of organic chemistry

Crich D, Huang X, Newcomb M.
PMID: 10813967
J Org Chem. 2000 Jan 28;65(2):523-9. doi: 10.1021/jo991570o.

beta-(Phosphatoxy)alkyl radicals generated by photolysis of Barton PTOC esters in the presence of allyl alcohol and tert-butyl mercaptan undergo nucleophilic substitution followed by 5-exo-trig radical ring closure leading to tetrahydrofurans in good yield and with high trans selectivity. beta-(Phosphatoxy)alkyl...

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Crich D, Huang X, Newcomb M. Inter- and intramolecular pathways for the formation of tetrahydrofurans from beta-(Phosphatoxy)alkyl radicals. Evidence for a dissociative mechanism. J Org Chem. 2000;65(2):523-9doi: 10.1021/jo991570o.
Crich, D., Huang, X., & Newcomb, M. (2000). Inter- and intramolecular pathways for the formation of tetrahydrofurans from beta-(Phosphatoxy)alkyl radicals. Evidence for a dissociative mechanism. The Journal of organic chemistry, 65(2), 523-9. https://doi.org/10.1021/jo991570o
Crich, et al. "Inter- and intramolecular pathways for the formation of tetrahydrofurans from beta-(Phosphatoxy)alkyl radicals. Evidence for a dissociative mechanism." The Journal of organic chemistry vol. 65,2 (2000): 523-9. doi: https://doi.org/10.1021/jo991570o
Crich D, Huang X, Newcomb M. Inter- and intramolecular pathways for the formation of tetrahydrofurans from beta-(Phosphatoxy)alkyl radicals. Evidence for a dissociative mechanism. J Org Chem. 2000 Jan 28;65(2):523-9. doi: 10.1021/jo991570o. PMID: 10813967.
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