BMC Health Serv Res. 2016 Jul 19;16:285. doi: 10.1186/s12913-016-1531-2.
What is the effectiveness of the support worker role for people with dementia and their carers? A systematic review.
BMC health services research
Dianne Goeman, Emma Renehan, Susan Koch
Affiliations
Affiliations
- RDNS Institute, Royal District Nursing Service Ltd, 31 Alma Rd, St Kilda, VIC, 3182, Australia. [email protected].
- RDNS Institute, Royal District Nursing Service Ltd, 31 Alma Rd, St Kilda, VIC, 3182, Australia.
PMID: 27435089
PMCID: PMC4950786 DOI: 10.1186/s12913-016-1531-2
Abstract
BACKGROUND: Dementia is progressive in nature and the associated functional decline inevitably leads to increasing dependence on others in areas of daily living. Models of support have been developed and implemented to assist with adjusting to living with memory loss and functional decline; to navigate the health and aged care system; and to access services. We undertook a systematic review of international literature on key worker type support roles to identify essential components and ascertain how the role can be best utilised to assist community-dwelling people with dementia and their carers. This review of support roles is the first to our knowledge to include both quantitative and qualitative studies and all models of support.
METHOD: A systematic review of studies written in English and published between January 2003 and December 2014. Data sources were Medline, PsychInfo and CINAHL, internet, expert consultation and reference lists of included studies. After screening articles to ensure that they reported on a key worker type support role, involved carers and or people with dementia living at home and removing duplicates, eligible papers were appraised and evaluated.
RESULTS: Thirty six studies were eligible for inclusion in the review. Eligible studies were divided into type of support roles and study type. The heterogeneity of included studies and high risk of bias made a meta-analysis inappropriate and it was therefore difficult to draw overall conclusions. However, essential components shared across support worker models that demonstrated a positive impact on carer burden and improved quality of life included: long term intervention, face to face contact, individualised education and support based on needs, multi-disciplinary teams, collaborative input, health/clinical background of support workers, ongoing follow up and inter professional and inter-sectoral collaborations. There was a lack of studies assessing cost-effectiveness.
CONCLUSIONS: Studies that include a high quality evaluation of holistic, tailored models of support that identify which components of support produce the most valuable outcomes to assist people with dementia and their carers and families to continue to live meaningful lives are needed. There is also a need for a cost effectiveness evaluation of support worker roles.
TRIAL REGISTRATION: PROSPERO international prospective register of systematic reviews: PROSPERO 2014 CRD42014013992 .
Keywords: Carers; Community dwelling people with dementia; Support workers
References
- Dementia (London). 2015 Jul;14(4):436-49 - PubMed
- Am J Alzheimers Dis Other Demen. 2009 Jun-Jul;24(3):193-207 - PubMed
- J Gerontol B Psychol Sci Soc Sci. 2003 Jan;58(1):S58-67 - PubMed
- Int J Geriatr Psychiatry. 2012 Dec;27(12):1305-14 - PubMed
- Aging Ment Health. 2009 Mar;13(2):162-70 - PubMed
- Int J Geriatr Psychiatry. 2008 Jan;23(1):65-72 - PubMed
- J Psychiatr Ment Health Nurs. 2005 Jun;12(3):359-64 - PubMed
- Aging Ment Health. 2011 Jan;15(1):5-12 - PubMed
- J Psychiatr Ment Health Nurs. 2010 May;17(4):312-8 - PubMed
- J Nutr Health Aging. 2010 Oct;14(8):669-76 - PubMed
- Alzheimers Dement. 2012 Sep;8(5):426-36 - PubMed
- Neurology. 2006 Nov 14;67(9):1592-9 - PubMed
- Gerontologist. 2003 Aug;43(4):521-31 - PubMed
- Gerontologist. 2003 Aug;43(4):547-55 - PubMed
- Aging Ment Health. 2010 Jan;14(1):44-56 - PubMed
- Psychiatr Serv. 2008 Apr;59(4):433-6 - PubMed
- Am J Psychiatry. 2004 May;161(5):850-6 - PubMed
- J Adv Nurs. 2011 Apr;67(4):774-87 - PubMed
- Health Soc Care Community. 2009 Sep;17(5):485-94 - PubMed
- Am J Manag Care. 2012 Feb;18(2):85-94 - PubMed
- Alzheimer Dis Assoc Disord. 2004 Apr-Jun;18(2):75-82 - PubMed
- Dementia (London). 2013 Sep;12(5):588-605 - PubMed
- Gerontologist. 2003 Feb;43(1):73-85 - PubMed
- J Am Geriatr Soc. 2009 Dec;57(12):2200-8 - PubMed
- BMJ. 2011 Sep 19;343:d5202 - PubMed
- BMC Geriatr. 2010 Aug 09;10:54 - PubMed
- Aging Ment Health. 2012;16(1):110-8 - PubMed
- Clin Interv Aging. 2014 Jun 11;9:915-28 - PubMed
- J Cross Cult Gerontol. 2011 Dec;26(4):365-77 - PubMed
- Ann Intern Med. 2006 Nov 21;145(10):713-26 - PubMed
- BMJ. 1997 Sep 20;315(7110):740-3 - PubMed
- J Am Geriatr Soc. 2008 Mar;56(3):421-8 - PubMed
- Aging Ment Health. 2004 Jan;8(1):40-51 - PubMed
- Int J Geriatr Psychiatry. 2003 Apr;18(4):298-307 - PubMed
- J Clin Nurs. 2005 Jul;14 (6):695-703 - PubMed
- Gerontologist. 2010 Oct;50(5):623-31 - PubMed
- J Health Serv Res Policy. 2005 Jul;10 Suppl 1:6-20 - PubMed
- Inj Prev. 2005 Jun;11(3):148-51 - PubMed
- J Adv Nurs. 1996 May;23(5):948-53 - PubMed
- Int J Geriatr Psychiatry. 2013 Sep;28(9):889-902 - PubMed
- Am J Geriatr Psychiatry. 2009 Sep;17 (9):734-43 - PubMed
- Int J Geriatr Psychiatry. 2010 Apr;25(4):395-402 - PubMed
- Am J Manag Care. 2009 Aug;15(8):521-8 - PubMed
- Int J Nurs Stud. 2011 Aug;48(8):933-43 - PubMed
- Br J Gen Pract. 2014 Nov;64(628):e735-41 - PubMed
- Gerontologist. 2003 Aug;43(4):556-67 - PubMed
- JAMA. 2003 Oct 15;290(15):2015-22 - PubMed
- BMC Health Serv Res. 2011 May 09;11:93 - PubMed
- Health Soc Care Community. 2014 Jan;22(1):1-12 - PubMed
- BMC Health Serv Res. 2012 Nov 14;12:395 - PubMed
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