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Longacre ML, Applebaum AJ, Buzaglo JS, et al. Reducing informal caregiver burden in cancer: evidence-based programs in practice. Transl Behav Med. 2018;8(2):145-155doi: 10.1093/tbm/ibx028.
Longacre, M. L., Applebaum, A. J., Buzaglo, J. S., Miller, M. F., Golant, M., Rowland, J. H., Given, B., Dockham, B., & Northouse, L. (2018). Reducing informal caregiver burden in cancer: evidence-based programs in practice. Translational behavioral medicine, 8(2), 145-155. https://doi.org/10.1093/tbm/ibx028
Longacre, Margaret L, et al. "Reducing informal caregiver burden in cancer: evidence-based programs in practice." Translational behavioral medicine vol. 8,2 (2018): 145-155. doi: https://doi.org/10.1093/tbm/ibx028
Longacre ML, Applebaum AJ, Buzaglo JS, Miller MF, Golant M, Rowland JH, Given B, Dockham B, Northouse L. Reducing informal caregiver burden in cancer: evidence-based programs in practice. Transl Behav Med. 2018 Mar 01;8(2):145-155. doi: 10.1093/tbm/ibx028. PMID: 29385550; PMCID: PMC6257028.
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Transl Behav Med. 2018 Mar 01;8(2):145-155. doi: 10.1093/tbm/ibx028.

Reducing informal caregiver burden in cancer: evidence-based programs in practice.

Translational behavioral medicine

Margaret L Longacre, Allison J Applebaum, Joanne S Buzaglo, Melissa F Miller, Mitch Golant, Julia H Rowland, Barbara Given, Bonnie Dockham, Laurel Northouse

Affiliations

  1. Department of Public Health, Arcadia University, Glenside, PA, USA.
  2. Research and Training Institute, Cancer Support Community, Philadelphia, PA, USA.
  3. Department of Psychiatry and Behavioral Sciences, Memorial Sloan Kettering Cancer Center, New York, NY, USA.
  4. Office of Cancer Survivorship, National Cancer Institute, Rockville, MD, USA.
  5. College of Nursing, Michigan State University, East Lansing, MI, USA.
  6. Cancer Support Community Greater Ann Arbor, Ann Arbor, MI, USA.
  7. School of Nursing, University of Michigan, Ann Arbor, MI, USA.

PMID: 29385550 PMCID: PMC6257028 DOI: 10.1093/tbm/ibx028

Abstract

Caring for people with cancer can be a burdensome and emotionally straining experience. Without adequate psychosocial support, distressed caregivers are at risk for psychiatric and medical morbidity, which can adversely affect patient outcomes. Although there is a tremendous need to provide effective and timely supportive care services for cancer caregivers, few community or clinically based services exist and the needs of these essential caregivers are profoundly underserved. This article describes three existing evidence-based programs and tools that address the needs of family caregivers of cancer patients: (a) the FOCUS Program, tested for efficacy in prior randomized clinical trials and implemented in community settings by agency staff; (b) the Program for the Study of Cancer Caregivers at Memorial Sloan Kettering Cancer Center (MSKCC), which addresses the needs of caregivers in a large health care system; and (c) CancerSupportSource®-Caregiver, an online platform for distress screening and referral developed by the Cancer Support Community to assess and address caregivers' needs. We also describe next steps related to broader dissemination for practitioners considering how best to support cancer caregivers now and in the future. Although each evidence-based program or tool represents a unique approach to supporting caregivers, together these approaches allow for a greater likelihood of meeting caregiver needs across a variety of contexts. Collaboration within and across organizations allowed for the development and effective implementation of each of the described initiatives.

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